|
"I, too, had to quit my job and become a stay at home mom to manage my child's diabetes when she entered the public school system. She was diagnosed at age 3. Once we encountered the public school system, it became clear I would not get support. I quit work to manage her diabetes at school. To the school system's credit, after a year of watching me come in at least once every single school day with younger children (including a baby) in tow, they decided to engage a full-time RN. That made life during a regular school day much easier BUT there remains no support for field trips (either I go or my daughter doesn't), bus transport or extracurriculars. If my daughter is in a sport I must also commit to attend every meet or game as there is no one required to be responsible and pay attention to her needs. The result is that I've remained a stay at home mom. My masters degree in health care administration is largely used to navigate my daughter's insurance issues; not for gainful employment. That has been the case for some 7 years, since she turned 6 and entered 1st grade in the public school system."—LC, Wheaton "Please support this important legislation."—FP, Chicago "We need this bill passed for our children's "I think it's very difficult--maybe even impossible at times-- |